Kawasaki Disease (KD), a rare but serious illness primarily affecting children under five, can lead to heart complications if not treated promptly. Symptoms include high fever lasting over five days, rash, red eyes, swollen lymph nodes, and changes in the mouth and extremities. The Kawasaki Disease Foundation (KDF), dedicated to awareness, education, and research, has supported families for 25 years. Founded by Greg Chin after his son’s diagnosis, KDF transforms personal challenges into global action. From parent gatherings to international collaborations, the organization unites families, researchers, and medical experts. In this roundup, discover inspiring stories, upcoming events, and opportunities to get involved in the fight against Kawasaki Disease.
Founder Greg Chin Reflects on 25 Years of KDF
Founder Greg Chin Reflects on 25 Years of KDF
Greg Chin launched the Kawasaki Disease Foundation in 2000, driven by his family’s ordeal with KD. What began as a modest parent symposium has evolved into a worldwide movement fostering awareness, education, and cutting-edge research. In a heartfelt Q&A, Greg recounts the pivotal moments: his son’s diagnosis sparking a resolve to ensure no family faces KD isolation. Milestones include early collaborations with Dr. Tomisaku Kawasaki’s legacy, funding studies on long-term effects, and building a supportive community. “From fear to purpose,” Greg shares how KDF grew, emphasizing timely diagnosis—within 10 days—to prevent coronary artery aneurysms, as recommended by the American Heart Association. Today, KDF continues advocating for better diagnostics and treatments, drawing on expertise from pediatric cardiologists worldwide.
This journey underscores KDF’s commitment to evidence-based support, partnering with institutions like UC San Diego for ongoing studies.
Thriving Beyond KD: A Father
Thriving Beyond KD: A Father’s Story
Loren Wheale opens his heart to parents enduring hospital vigils with their sick children, haunted by fears of an uncertain future. His daughter Mollie, born November 27, 2007, in Manteca, California, was a vibrant toddler—curious and full of energy. But her second birthday marked a nightmare: instead of cake and balloons, she lay in a hospital bed battling Kawasaki Disease. Loren vividly recalls the terror of those days, the urgent IVIG infusions, and aspirin therapy that saved her heart. Years later, Mollie thrives, a testament to resilience and early intervention. Loren’s story highlights KD’s potential for full recovery with prompt care, while stressing monitoring for long-term cardiac health. Shared through KDF, it offers hope and practical insights for families navigating diagnosis, treatment, and beyond.
KDF Youth
KDF Youth’s Standout Intern: Joshua & Charlotte Wei
KDF Youth shines a light on siblings Joshua and Charlotte Wei, whose passion fuels the program’s mission. Joshua, diagnosed with Kawasaki Disease at a young age, felt the gaps in resources firsthand—scarce information and limited support. Now, he channels that into advocacy, creating awareness content to equip other families. His twin sister Charlotte, inspired by Joshua’s journey, joined as an intern, co-developing materials and peer support initiatives. Together, they exemplify turning adversity into action, producing videos, social media campaigns, and resources for KD survivors. Their work aligns with KDF’s youth empowerment, backed by pediatric experts emphasizing mental health alongside physical recovery post-KD.
Kawasaki Disease Awareness Day Campaign Graphic
Kawasaki Disease Awareness Day: January 26, 2025
Mark your calendars for Kawasaki Disease Awareness Day on January 26, 2025. The “Lights On, Hearts Strong” campaign rallies communities to spotlight KD challenges, honor affected children, and fund research. Light up homes and share stories to amplify the message. Current fundraising stands at $0 of $50,000—donate today to fuel education and studies. Learn More >>
Dr. Tomisaku Kawasaki Memorial Scholarship
Honoring the disease’s discoverer, this scholarship reopens January 26, 2025, for the 2025-2026 academic year. It supports KD survivors and siblings pursuing higher education, reflecting Dr. Kawasaki’s pediatric legacy. Eligible students should prepare applications early. Learn More >>
Join UC San Diego’s KD Research Study
Adults over 18 without KD history are needed for a control group in UC San Diego’s long-term effects study. Complete a questionnaire via email, with optional blood draw. Your contribution advances understanding of Kawasaki Disease outcomes. Join the Study
These updates from the Kawasaki Disease Foundation showcase a quarter-century of progress in combating KD. From personal triumphs to community drives, KDF empowers families with reliable resources and hope. Consult pediatricians for symptoms, support research, and participate in events. Stay connected for more stories—together, we light the way forward.
References
- Kawasaki Disease Foundation: kdfoundation.org
- American Heart Association Guidelines on Kawasaki Disease
- UC San Diego Kawasaki Disease Research Alliance
