Kawasaki Disease remains a challenging condition for children and families worldwide, characterized by inflammation of blood vessels that requires prompt diagnosis and treatment. As the Kawasaki Disease Foundation (KDF) marks 25 years of impactful work, we’re highlighting inspiring stories, upcoming events, and opportunities to get involved. From founder reflections to personal triumphs and research calls, these updates underscore the foundation’s commitment to awareness, support, and advancing Kawasaki Disease research.
Founder Greg Chin Reflects on 25 Years of KDF
Founder Greg Chin Reflects on 25 Years of KDF
In a heartfelt Q&A, founder Greg Chin shares the origins of KDF, established in 2000 following his son’s diagnosis with Kawasaki Disease. What began as a modest parent symposium has evolved into a global network uniting families, researchers, and medical professionals. Greg’s personal journey transformed grief into action, fostering education, awareness, and collaborative research efforts. Over the decades, KDF has supported countless families navigating the uncertainties of Kawasaki Disease, emphasizing early detection to prevent complications like coronary artery aneurysms. This milestone reflection highlights the foundation’s enduring legacy and future vision for eradicating the disease’s long-term effects.
Thriving Beyond KD: A Father’s Inspiring Story
A father sharing his story of resilience after his daughter's Kawasaki Disease diagnosis
Loren Wheale recounts his daughter Mollie’s battle with Kawasaki Disease, born on November 27, 2007, in Manteca, California. Mollie was a vibrant, curious child until her second birthday, when symptoms led to hospitalization instead of celebration. For parents in hospital rooms fearing an uncertain future, Loren’s message is one of hope: life can return to normal and even thrive post-KD. With timely treatment including IVIG and aspirin therapy—standard protocols recommended by pediatric experts—Mollie overcame the acute phase. Today, her story exemplifies recovery, resilience, and the critical role of community support in Kawasaki Disease management. Families facing similar fears can draw strength from real-life victories like this.
Spotlight on KDF Youth Interns: Joshua and Charlotte Wei
KDF Youth interns Joshua and Charlotte Wei sharing their Kawasaki Disease awareness efforts
Siblings Joshua and Charlotte Wei represent the next generation of Kawasaki Disease advocates through KDF Youth. Joshua’s personal experience with KD in childhood drove him to intern, aiming to provide resources his family lacked. Charlotte, inspired by her twin, joined to create content and support affected families. Their dedication shines in innovative campaigns and peer outreach, embodying KDF’s mission to turn personal challenges into purposeful action. These young interns demonstrate how lived experience fuels advocacy, helping spread vital information on symptoms like persistent fever, rash, and swollen lymph nodes—key to early Kawasaki Disease intervention.
Kawasaki Disease Awareness Day promotional banner
Kawasaki Disease Awareness Day: January 26, 2025
Mark your calendars for Kawasaki Disease Awareness Day on January 26, 2025. The “Lights On, Hearts Strong” campaign rallies communities to highlight the strength of KD kids and families. Light up homes, share stories, and educate on this pediatric vasculitis affecting about 1 in 10,000 children under 5, per CDC data. Join the movement to boost diagnosis rates and fund research—currently $0 of $50,000 raised.
Dr. Tomisaku Kawasaki Memorial Scholarship
Honoring the doctor who first described Kawasaki Disease in 1967, this scholarship reopens January 26, 2025, for the 2025-2026 school year. Eligible students impacted by KD can apply to support their education.
[Learn More >>](https://kdfoundation.org/dr-tomisaku-kawasaki-memorial-scholarship/)
Join UC San Diego’s Kawasaki Disease Research Study
Adults over 18 without KD history are needed for a control group studying long-term effects. Complete a questionnaire and optional blood draw via email enrollment. Your contribution advances understanding of cardiac risks and treatment outcomes.
Join the Study
These stories and initiatives from the Kawasaki Disease Foundation remind us of the power of community in facing this mysterious illness. Whether sharing experiences, raising funds, or participating in research, every action brings us closer to better outcomes for children with Kawasaki Disease. Consult pediatricians for symptoms and stay connected with KDF for ongoing support—together, we illuminate the path forward.
