The Kawasaki Disease Foundation (KDF) marks a significant milestone as it celebrates 25 years of supporting families affected by Kawasaki Disease. Founded in 2000 by Greg Chin following his son’s diagnosis, KDF has grown from a single parent symposium into a global network uniting families, researchers, and medical professionals. This organization focuses on raising awareness, providing education, and funding research to ensure no parent faces Kawasaki Disease alone. In this roundup of the latest updates, we highlight inspiring stories, upcoming events, and opportunities to get involved in the Kawasaki Disease community.
Founder Greg Chin Reflects on 25 Years of KDF
Greg Chin’s personal journey with Kawasaki Disease led to the creation of the Kawasaki Disease Foundation, transforming a family’s challenge into a worldwide mission. What began as a small gathering for parents has evolved into a robust platform for advocacy and support. Over the past 25 years, KDF has achieved key milestones, including expanded research initiatives and international collaborations that have advanced understanding and treatment of Kawasaki Disease.
Founder Greg Chin Reflects on 25 Years of KDF
In a special Q&A, Greg shares insights on the foundation’s origins, the challenges overcome, and the vision for the future. His reflections underscore the importance of community in managing Kawasaki Disease, offering hope and practical guidance to newly diagnosed families. This anniversary serves as a reminder of how individual determination can drive lasting change in pediatric health.
Thriving Beyond KD: A Father’s Inspiring Story
Loren Wheale shares the emotional journey of his daughter Mollie, diagnosed with Kawasaki Disease around her second birthday. Born on November 27, 2007, in Manteca, California, Mollie was a vibrant child whose illness turned a joyful milestone into a hospital ordeal. Loren recounts the fear and uncertainty felt by parents in similar situations, emphasizing that recovery and normalcy are possible with proper care.
Thriving Beyond KD: A Father's Story
Today, Mollie’s story highlights resilience, showing how families can thrive beyond Kawasaki Disease. Loren’s narrative provides comfort to those currently in hospital rooms, drawing from firsthand experience to affirm that life can return to normal. Such personal accounts reinforce KDF’s role in emotional support and long-term recovery resources for Kawasaki Disease patients.
KDF Youth’s Standout Interns: Joshua and Charlotte Wei
Siblings Joshua and Charlotte Wei represent the next generation of Kawasaki Disease advocates through their work with KDF Youth. Joshua’s own experience with the disease at a young age motivated him to raise awareness and ensure other families access better resources. Charlotte, inspired by her twin brother, joined to create content and support affected families.
KDF Youth Standout Interns Joshua and Charlotte Wei
Together, they demonstrate creativity and dedication, turning personal challenges into purposeful action. Their contributions align perfectly with KDF’s mission, uplifting the community and amplifying youth voices in Kawasaki Disease advocacy. This intern spotlight celebrates how young people are shaping the future of awareness and support.
Kawasaki Disease Awareness Day: Lights On, Hearts Strong
Mark your calendars for Kawasaki Disease Awareness Day on January 26, 2025. The “Lights On, Hearts Strong” campaign honors the strength of children and families battling Kawasaki Disease. This initiative aims to highlight challenges, boost awareness, and celebrate resilience—join the movement to make a real impact.
Kawasaki Disease Awareness Day Campaign Graphic
Current fundraising stands at $0 of $50,000 raised, with more details available at the official site. Participation helps illuminate Kawasaki Disease and supports vital programs.
Dr. Tomisaku Kawasaki Memorial Scholarship Opportunity
In tribute to Dr. Tomisaku Kawasaki’s pioneering work in pediatric medicine, KDF offers the Memorial Scholarship. Applications reopen on January 26, 2025, for the 2025-2026 school year. Eligible candidates are encouraged to apply and contribute to the legacy of Kawasaki Disease research and care.
UC San Diego Kawasaki Disease Research Study
The UC San Diego team invites adults over 18 with no Kawasaki Disease history to join a control group study on long-term effects. Participation involves a questionnaire and optional blood draw via email enrollment. Your involvement advances scientific understanding of Kawasaki Disease.
In summary, the Kawasaki Disease Foundation continues to lead with impactful stories, youth involvement, and key events like Awareness Day and scholarships. These updates reflect 25 years of progress and a commitment to better outcomes for all affected. Stay connected, consider donating or participating in studies, and explore more resources at KDF—together, we strengthen hearts and spread light.
References
- Kawasaki Disease Foundation Official Website: kdfoundation.org
- Kawasaki Disease Awareness Day: kdday.org
- Dr. Tomisaku Kawasaki Memorial Scholarship: kdfoundation.org/dr-tomisaku-kawasaki-memorial-scholarship
- UC San Diego Research Study: kdfoundation.org/akd
