The Kawasaki Disease Foundation (KDF) marks a significant milestone as it celebrates 25 years of dedicated service to families affected by Kawasaki Disease. Founded in 2000 by Greg Chin after his own son’s diagnosis, KDF has evolved from a modest parent symposium into a global network uniting families, researchers, and medical professionals. This nonprofit organization focuses on raising awareness, providing education, and funding critical research into Kawasaki Disease—a rare but serious illness primarily affecting young children, characterized by inflammation of blood vessels. In this roundup of the latest news, we highlight inspiring stories, upcoming events, and opportunities to get involved, ensuring no family faces Kawasaki Disease alone.
Founder Greg Chin reflecting on 25 years of Kawasaki Disease Foundation milestones
Founder Greg Chin Reflects on 25 Years of KDF
Greg Chin’s journey began with a personal crisis that ignited a lifelong commitment. After his son’s battle with Kawasaki Disease, Greg established KDF to bridge gaps in support and knowledge. What started as grassroots efforts has grown into international symposia, research grants, and advocacy campaigns. In a recent Q&A, Greg shares pivotal moments, such as early challenges in diagnosis and treatment, and how community collaboration has advanced understanding of long-term effects like coronary artery issues. His vision emphasizes early detection—key since symptoms like prolonged fever, rash, and swollen lymph nodes can mimic other illnesses—and stresses the importance of IVIG treatment within 10 days of onset for optimal outcomes. Today, KDF continues to fund studies on genetics and immunology, drawing from authoritative sources like the American Heart Association’s guidelines on Kawasaki Disease management.
This reflection not only honors the past but inspires future progress, reminding us that collective action transforms tragedy into triumph.
Thriving Beyond KD: A Father’s Inspiring Story
Personal testimonies like Loren Wheale’s underscore the resilience fostered by KDF support. Loren recounts his daughter Mollie’s diagnosis around her second birthday in 2007. Born in Manteca, California, Mollie was a vibrant toddler when fever, red eyes, and strawberry tongue signaled Kawasaki Disease. Hospitalized instead of celebrating, she endured treatment but emerged stronger.
Father sharing his family's Kawasaki Disease journey and recovery
Years later, Mollie thrives, participating in school and activities without limitations from her past illness. Loren speaks directly to parents in ICU waiting rooms: “I know that fear—the uncertainty if life will normalize.” His story highlights monitoring for aneurysms via echocardiograms and the emotional toll, backed by experiences shared in KDF forums. According to pediatric cardiology experts, up to 25% of untreated cases develop heart complications, making stories like Mollie’s vital for awareness.
KDF Youth Spotlight: Siblings Joshua and Charlotte Wei
Young voices are amplifying KDF’s mission through its Youth program. Siblings Joshua and Charlotte Wei stand out as standout interns, bringing passion and innovation. Joshua, who faced Kawasaki Disease as a child, channels his experience into awareness efforts, ensuring others access resources his family lacked. Charlotte, inspired by her twin, co-creates content like videos and social media posts to support families.
KDF Youth interns Joshua and Charlotte Wei promoting Kawasaki Disease awareness
Their work exemplifies turning adversity into advocacy, aligning with KDF’s goal of empowering survivors. Joshua notes the gaps in early education, while Charlotte focuses on mental health support post-diagnosis—areas validated by studies from institutions like UC San Diego.
Promotional graphic for Kawasaki Disease Awareness Day campaign
Kawasaki Disease Awareness Day: January 26, 2025
Mark your calendars for Kawasaki Disease Awareness Day on January 26, 2025. The “Lights On, Hearts Strong” campaign calls for global participation to spotlight challenges, celebrate KD warriors, and drive research funding. Light up homes, share stories, and donate—current fundraising stands at $0 of $50,000.
Dr. Tomisaku Kawasaki Memorial Scholarship
Honoring the disease’s discoverer, this scholarship reopens January 26 for the 2025-2026 academic year. It supports KD survivors and siblings pursuing higher education, reflecting Dr. Kawasaki’s pediatric legacy.
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Additionally, UC San Diego’s Kawasaki Disease Research team recruits control group participants over 18 with no KD history. Complete a questionnaire and optional blood draw via email to aid long-term effects research.
Join the Study
In summary, these updates from the Kawasaki Disease Foundation showcase a legacy of hope, innovation, and community. From founder reflections to youth leadership and vital events, KDF remains a trusted pillar for those navigating Kawasaki Disease. Consult pediatricians for symptoms, support research, and join the movement—your involvement lights the path forward. Stay connected for more stories and resources.
