Kawasaki Disease (KD) is a rare but serious illness primarily affecting children under 5 years old, causing inflammation in blood vessels throughout the body. Early symptoms include a high fever lasting five days or more, red cracked lips, strawberry tongue, rash, swollen lymph nodes, bloodshot eyes without discharge, and red swollen hands and feet. If untreated, it can lead to heart complications like coronary artery aneurysms, making awareness critical. According to the CDC, prompt treatment with intravenous immunoglobulin (IVIG) and aspirin reduces risks significantly. The Kawasaki Disease Foundation (KDF), founded in 2000, has been at the forefront of this fight for 25 years, supporting families, funding research, and driving education. In this roundup of the latest from KDF, we highlight founder reflections, personal stories, youth involvement, upcoming events, scholarships, and research opportunities—all underscoring the foundation’s enduring mission.
Founder Greg Chin Reflects on 25 Years of KDF
Greg Chin established the Kawasaki Disease Foundation after his son’s diagnosis in 1998, turning personal hardship into a global movement. What began as a small parent symposium has evolved into a robust network uniting families, researchers, and doctors worldwide. In a special Q&A marking the 25th anniversary, Greg shares the journey’s highs and challenges, from early awareness efforts to groundbreaking research support.
His vision ensured no parent faces KD alone, emphasizing education and community. Today, KDF continues to expand its impact through events, resources, and advocacy.
Founder Greg Chin Reflects on 25 Years of KDF
Thriving Beyond KD: A Father’s Story of Resilience
Loren Wheale shares his daughter Mollie’s journey to inspire parents in hospital rooms, gripped by fear for their child’s future. Born on November 27, 2007, in Manteca, California, Mollie was a vibrant toddler until her second birthday, when KD struck. Instead of celebrations, the family endured hospital stays amid uncertainty.
Despite the ordeal, Mollie thrived, proving life can return to normal with proper care and support. Loren’s narrative highlights KD’s emotional toll and the power of community resources like those from KDF, offering hope that recovery is possible.
Thriving Beyond KD: A Father
KDF Youth Intern Spotlight: Joshua and Charlotte Wei
Siblings Joshua and Charlotte Wei exemplify the next generation’s commitment to KD awareness. Joshua, who battled KD young, channels his experience into advocacy, ensuring others access the support his family lacked. Charlotte, inspired by her twin, joined to create content and aid families.
Their dedication to KDF Youth embodies turning adversity into action, amplifying voices and fostering resilience in the KD community.
KDF Youth
Kawasaki Disease Awareness Day: January 26, 2025
Join the “Lights On, Hearts Strong” campaign on Kawasaki Disease Awareness Day, January 26, 2025. This initiative spotlights the strength of KD-affected children and families while raising funds—currently $0 of $50,000—for research and support. Light up your home or community to symbolize hope and visibility for this underrecognized condition.
Learn more and participate via the official site to amplify the message.
Dr. Tomisaku Kawasaki Memorial Scholarship Opportunity
Honoring the pediatrician who first described KD in 1967, this scholarship reopens January 26, 2025, for the 2025-2026 school year. It supports KD survivors or affected families pursuing higher education, recognizing their resilience. Eligible students should prepare applications to continue Dr. Kawasaki’s legacy.
Learn More
Join UC San Diego’s Kawasaki Disease Research Study
UC San Diego’s Kawasaki Disease Research team invites adults over 18 with no KD history for a control group study on long-term effects. Simple enrollment via email includes a questionnaire and optional blood draw, advancing understanding and treatments.
Join the Study
In summary, the Kawasaki Disease Foundation’s 25-year milestone showcases unwavering dedication to awareness, support, and research amid challenges like early diagnosis barriers. From Greg Chin’s founding vision to youth-led initiatives and vital opportunities like Awareness Day and scholarships, KDF empowers families. Consult healthcare professionals for symptoms and stay informed—early intervention saves hearts. Support KDF today: donate, share stories, or join events to light the path forward.
References
- Centers for Disease Control and Prevention (CDC): About Kawasaki Disease
- Cleveland Clinic: Kawasaki Disease Symptoms and Treatment
- Kawasaki Disease Foundation: Official updates on 25th anniversary, Awareness Day, and programs (kdfoundation.org)
- UC San Diego Kawasaki Disease Research: Ongoing studies including control groups (pediatrics.ucsd.edu)
