The Kawasaki Disease Foundation (KDF) marks a significant milestone with 25 years of dedicated service to families affected by Kawasaki Disease. Founded in 2000 by Greg Chin after his son’s diagnosis, KDF has evolved from a small parent symposium into a global force for awareness, education, and research. This update highlights inspiring stories, upcoming events, and opportunities to get involved in the fight against Kawasaki Disease, a serious childhood illness that requires early detection and treatment to prevent long-term heart complications.
Founder Greg Chin Reflects on 25 Years of KDF
Greg Chin’s personal journey began with a devastating diagnosis for his young son, sparking a mission to ensure no parent faces Kawasaki Disease alone. What started as a grassroots effort to connect families has grown into an international network uniting parents, researchers, and healthcare professionals. Today, KDF continues to drive progress through education programs, research funding, and community support, reflecting Greg’s unwavering commitment to advancing Kawasaki Disease awareness and treatment.
Founder Greg Chin Reflects on 25 Years of KDF
In this exclusive Q&A, Greg shares pivotal milestones, from early symposia to global collaborations, emphasizing how family stories fuel ongoing research into Kawasaki Disease etiology and management. His insights underscore the foundation’s role in improving outcomes for affected children, drawing on expertise from leading pediatric cardiologists.
Thriving Beyond KD: A Father’s Inspiring Story
Loren Wheale shares a heartfelt account of his daughter Mollie, born on November 27, 2007, in Manteca, California. Mollie was a vibrant, curious toddler until Kawasaki Disease struck around her second birthday, turning celebrations into hospital stays filled with uncertainty and fear. Loren’s narrative resonates with parents navigating the emotional and medical challenges of Kawasaki Disease, offering hope through Mollie’s resilience and recovery.
Thriving Beyond KD: A Father
Having walked that path, Loren highlights the importance of timely diagnosis—typically involving fever, rash, and swollen lymph nodes—and the critical role of intravenous immunoglobulin (IVIG) therapy. His experience aligns with guidelines from authoritative bodies like the American Heart Association, stressing follow-up care to monitor for coronary artery aneurysms, a key long-term risk of Kawasaki Disease.
KDF Youth’s Standout Interns: Joshua and Charlotte Wei
Siblings Joshua and Charlotte Wei exemplify the next generation’s commitment to Kawasaki Disease advocacy through KDF Youth. Joshua, who battled KD as a child, channels his experience into awareness campaigns, ensuring families access resources he once lacked. Charlotte, inspired by her twin, collaborates to create impactful content and support networks for those affected.
KDF Youth
Their dedication embodies KDF’s mission, turning personal trials into purposeful action. With creativity and passion, they amplify voices in the Kawasaki Disease community, contributing to educational materials backed by pediatric research experts.
Kawasaki Disease Awareness Day: January 26, 2025
Mark your calendars for Kawasaki Disease Awareness Day on January 26, 2025, themed “Lights On, Hearts Strong.” This campaign spotlights the resilience of KD kids and families while raising vital awareness about symptoms and the need for swift medical intervention. Join the movement to light up the challenges and celebrate triumphs in the Kawasaki Disease journey.
Kawasaki Disease Awareness Campaign Graphic
Current fundraising stands at $0 of $50,000—your support can accelerate research and family aid programs.
Dr. Tomisaku Kawasaki Memorial Scholarship
Honoring the pioneering pediatrician who first described Kawasaki Disease in 1967, this scholarship reopens applications on January 26, 2025, for the 2025-2026 academic year. Eligible students impacted by KD are encouraged to apply, fostering future leaders in medicine and advocacy.
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Join UC San Diego’s Kawasaki Disease Research Study
The UC San Diego team invites adults over 18 with no KD history to join a control group study on long-term effects. Participation involves a questionnaire and optional blood draw, providing invaluable data to refine Kawasaki Disease understanding and treatments.
Join the Study
These updates reflect KDF’s enduring impact over 25 years, from personal triumphs to scientific advancements in Kawasaki Disease care. Whether sharing stories, funding research, or participating in events, every effort brings us closer to better outcomes for children worldwide. Stay connected, support the cause, and consult pediatric specialists for any concerns—early action saves hearts. Explore more KDF resources today!
