Kawasaki Disease remains a mysterious childhood illness that requires greater awareness, research, and support for affected families. As the Kawasaki Disease Foundation (KDF) marks significant milestones, including 25 years of impactful work, we’re highlighting the latest stories, campaigns, and opportunities to get involved. From founder reflections to personal triumphs and upcoming events, these updates showcase the resilience of KD kids and their loved ones.
large breed dog that doesn t shed
Founder Greg Chin Reflects on 25 Years of KDF
Founder Greg Chin Reflects on 25 Years of KDF
As we celebrate 25 years of the Kawasaki Disease Foundation, we’re honored to look back on where it all began with one family’s determination to make sure no parent ever faced Kawasaki Disease alone. Greg Chin founded KDF in 2000 after his son’s diagnosis, transforming personal hardship into a global mission uniting families, researchers, and doctors. What started as a small parent symposium has grown into a powerful movement dedicated to awareness, education, and research. In a special Q&A, Greg shares the journey, key milestones, and vision for the future. This reflection underscores KDF’s commitment to advancing understanding of Kawasaki Disease symptoms, treatment, and long-term effects, drawing on expertise from pediatric specialists worldwide.
The foundation has funded critical studies, supported thousands of families, and advocated for early diagnosis—vital since Kawasaki Disease often presents with prolonged fever, rash, swollen lymph nodes, and red eyes in children under five. Greg’s story highlights the importance of community in navigating this vasculitis condition.
Thriving Beyond KD: A Father’s Story
Thriving Beyond KD: A Father
My name is Loren Wheale, and I want to tell you about my daughter Mollie. This story is for parents sitting in a hospital room with a sick child, scared and wondering if life will ever be normal again—I’ve been there and know that fear intimately. Mollie was born on November 27, 2007, in Manteca, California. She was a bright, curious little girl from the start, always moving and always learning. But her second birthday wasn’t celebrated with cake and balloons; it was spent in a hospital bed battling Kawasaki Disease.
Mollie’s diagnosis came after persistent fever and classic symptoms, treated with IVIG and aspirin as per standard protocols recommended by authoritative bodies like the American Heart Association. Today, she thrives, proving that with timely intervention, children can overcome KD’s potential coronary complications. Loren’s account emphasizes emotional support, regular follow-ups with cardiologists, and family resilience—key elements backed by KDF resources and expert guidelines.
Many families draw strength from everyday joys, including pets that require minimal upkeep, such as big dogs that don t shed much.
KDF Youth’s Standout Intern: Joshua & Charlotte Wei
KDF Youth
This month, we proudly spotlight siblings Joshua and Charlotte Wei, who bring heart, dedication, and creativity to KDF Youth. Joshua’s personal experience with Kawasaki Disease at a young age inspired him to advocate, ensuring other families access resources his didn’t. Charlotte, motivated by her twin brother’s journey, joined to create content, support families, and amplify voices. Together, they embody KDF’s mission, turning adversity into purpose.
Their work includes awareness campaigns and peer support, demonstrating youth leadership in pediatric health advocacy. This aligns with KDF’s efforts to empower survivors, fostering long-term wellness monitoring for heart health post-KD.
For visuals of inspiring figures, see show me a picture of a mastiff.
Kawasaki Disease Awareness Day: January 26, 2025
Join the “Lights On, Hearts Strong” campaign on January 26, 2025, to honor the strength of KD kids. This movement illuminates Kawasaki Disease challenges, raises awareness, and celebrates family resilience. Goals include raising $50,000 for research and support, with 90 cents of every dollar directly funding programs—no paid staff ensures maximum impact.
Ways to participate: donate (in honor of loved ones), light up spaces in white and red, share #LightsOnHeartsStrong on social media, wear red, shop awareness gear, or start a fundraiser. Visit kdday.org for details.
Dr. Tomisaku Kawasaki Memorial Scholarship
Honoring the doctor who first described Kawasaki Disease, this scholarship reopens January 26, 2025, for the 2025-2026 school year. Eligible candidates—often KD survivors or family members pursuing health-related fields—are encouraged to apply. Learn more at kdfoundation.org/dr-tomisaku-kawasaki-memorial-scholarship/.
UC San Diego’s Kawasaki Disease Research Study
UC San Diego seeks adults over 18 with no KD history for a control group in a long-term effects study. Enroll via email, complete a questionnaire, and optionally provide a blood draw. Your contribution advances research—details at kdfoundation.org/akd/.
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In conclusion, these updates from the Kawasaki Disease Foundation highlight ongoing progress in awareness, research, and community support. Whether reflecting on 25 years, sharing survivor stories, or rallying for Awareness Day, KDF empowers families facing this serious condition. Consult pediatricians for symptoms and consider involvement through donations or studies for better outcomes. Stay informed and connected—explore more at kdfoundation.org.
References
- Kawasaki Disease Foundation: kdfoundation.org
- KD Awareness Day: kdday.org
- American Academy of Pediatrics Kawasaki Disease Guidelines
- Dr. Tomisaku Kawasaki’s original research publications
