Kawasaki Disease (KD) remains a challenging condition for children and families worldwide, but organizations like the Kawasaki Disease Foundation (KDF) are leading the charge in awareness, research, and support. Celebrating 25 years since its founding in 2000, KDF continues to unite parents, researchers, and medical professionals to ensure no family faces KD alone. From heartfelt personal stories to upcoming events and opportunities, here’s the latest from the foundation that has grown from a single parent-led symposium into a global movement.
Founder Greg Chin Reflects on 25 Years of KDF
Founder Greg Chin Reflects on 25 Years of Kawasaki Disease Foundation
Greg Chin established the Kawasaki Disease Foundation after his own son’s diagnosis with KD, turning personal hardship into a lifelong commitment. In a special Q&A marking the 25-year milestone, Greg shares how it all began and the key achievements that have defined KDF’s journey. What started as efforts to connect families has evolved into comprehensive programs for education, awareness, and cutting-edge research. His insights highlight the foundation’s impact, drawing on decades of experience to inspire ongoing progress in Kawasaki Disease care. According to experts at leading pediatric institutions, early diagnosis and treatment—often involving IVIG and aspirin—are critical, and KDF’s resources have helped countless families navigate this.
Thriving Beyond KD: A Father’s Inspiring Story
Personal testimonies underscore KDF’s real-world impact. Loren Wheale recounts his daughter Mollie’s journey with Kawasaki Disease, born on November 27, 2007, in Manteca, California. Mollie was a vibrant child until her second birthday, when symptoms landed her in the hospital instead of a celebration. For parents in similar situations—staring at hospital monitors filled with uncertainty—Loren’s story offers hope. Having lived through the fear, he emphasizes resilience and recovery, proving that life can thrive beyond KD. Stories like this align with authoritative sources such as the American Heart Association, which notes KD’s potential for coronary artery complications but stresses excellent outcomes with prompt intervention.
Thriving Beyond KD: A Father's Story
These narratives reflect KDF’s mission to provide emotional support alongside medical guidance, helping families rebuild stronger.
KDF Youth Intern Spotlight: Joshua and Charlotte Wei
The next generation is stepping up through KDF Youth. Siblings Joshua and Charlotte Wei have shone as standout interns, bringing passion and innovation. Joshua, who experienced Kawasaki Disease young, uses his platform to advocate for better resources—ones his family lacked initially. Charlotte, inspired by her twin, collaborates to create content and aid affected families. Their work exemplifies turning adversity into action, amplifying voices in the Kawasaki Disease community. As pediatric research evolves, youth involvement like theirs ensures fresh perspectives in awareness campaigns.
KDF Youth Standout Interns Joshua and Charlotte Wei
Kawasaki Disease Awareness Day: Lights On, Hearts Strong – January 26, 2025
Mark your calendars for Kawasaki Disease Awareness Day on January 26, 2025. The “Lights On, Hearts Strong” campaign calls on communities to highlight KD challenges, celebrate affected children’s bravery, and drive change. Join virtual and local events to light up awareness—currently, fundraising stands at $0 of $50,000 raised. Participation fosters the resilience seen in KD warriors and their families. Learn More >>
Kawasaki Disease Awareness Day Campaign Banner
This initiative builds on evidence from organizations like the Centers for Disease Control and Prevention (CDC), underscoring KD’s rarity yet seriousness, affecting about 25 per 100,000 children under 5 in the U.S.
Dr. Tomisaku Kawasaki Memorial Scholarship Reopens
Honoring the doctor who first identified Kawasaki Disease, the KDF scholarship for the 2025-2026 school year reopens January 26, 2025. Eligible students impacted by KD are encouraged to apply, supporting education as a pathway to brighter futures. Learn More >>
Join UC San Diego’s Kawasaki Disease Research Study
Contribute to science: UC San Diego’s team seeks adults over 18 without KD history for a control group studying long-term effects. Simple enrollment via email, questionnaire, and optional blood draw can advance understanding. Join the Study
In summary, from 25 years of foundational work to empowering youth and funding research, the Kawasaki Disease Foundation exemplifies expertise and trustworthiness in KD support. Families can rely on KDF’s authoritative resources, backed by real experiences and medical collaboration. Stay connected for updates, share your story, and participate in upcoming events to strengthen the KD community.
